Global Innovation Partnership for Mitochondrial Disease
This partnership aims to provide a unique platform to help families manage the complexities of day-to-day care, as well as facilitate enhanced communication with their personal and clinical care teams.
We believe mitochondrial disease needs innovation at a global scale to help everyone affected by this disease live their best life. This partnership is the first step in transforming the management and delivery of care, not only for those affected by mitochondrial disease, but the entire rare disease community.
The partnership goals include capturing critical information to help researchers and clinicians learn more about this rare disease to aid in the development of therapies, and ultimately a cure for mitochondrial disease.
MitoAction is a Boston based nonprofit whose mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives. Since its founding in 2005, MitoAction has served families from across the U.S. and the globe, working tirelessly to offer comprehensive, up-to-date, expert resources, information, and support at no cost to any patient, family, clinician, educator, or member of the community.
Care3™ is the world’s first team collaboration platform for healthcare delivered in the home and community. The HIPAA compliant Care3 platform helps collaborative care programs (e.g. PACE) operate more effectively by driving visibility and accountability for care delivered outside of health facilities. This unprecedented insight enables care teams to intervene to prevent costly outcomes such as emergency visits and hospitalizations.